Pam is a 54-year-old grandma living with relapsing MS since 2012. She’s currently worried she won’t be able to keep up with her baby grandson Canden. Watch the video to check out the practical tips the yes team gives Pam.
Pam has experience taking Tecfidera® (dimethyl fumarate). She may or may not be currently on TECFIDERA. She has been paid to share her story about living with MS. Individual experiences with TECFIDERA may vary. Talk to your healthcare provider to see if TECFIDERA may be right for you.
Pam H., living with relapsing MS
Continue watching for Indication and Important Safety Information at the end of this video.
Pam: My name is Pam. My grandson's name is Canden. He is 13 months old. I take care of him most of the time while mommy and daddy work. I just love him to death and he's the joy of my life. I've been wanting to be a grandma for quite some time.
I was diagnosed with relapsing MS in March of 2012. Well, sometimes I get tired. I don't get as tired as I used to because he gives me energy and strength and light. But I know there may come a time, especially as he gets older and more active, that I probably will get a little more drained. And that's something that I'm concerned about.
Saying yes to being the best grandma she can be
Narrator: A team of experts came together to help Pam say yes to being the best grandma she can be.
[YES TEAM ARRIVES]
Mariah M., Parenting expert
Mariah: I’m Mariah, and I’m a full-time mom who started a parenting blog after my son was born.
Dr. Ann Bass, Neurologist
Doctor Bass: I'm Dr. Ann Bass. I'm an adult neurologist specializing in the treatment and management of relapsing multiple sclerosis.
Jill K., Living with relapsing MS
Jill: I’m Jill, I’m a mother of 3 and I have relapsing MS.
Pam: Good morning.
Mariah: Good morning! Hi! I’m Mariah, it’s nice to meet you.
JILL: Hi! I’m Jill, but I’m a hugger.
Jill: What exactly are you looking to do that’s so different, that you need help with?
Pam: Well, being tired is one of my biggest issues.
Jill: What is something that you want to do for yourself?
Pam: [LAUGHS] That’s a good question. Because it, it’s not about me too much anymore, it’s about—
Jill: It’s not, but we’re going to hopefully together collectively tell you, it is about you.
Jill: Because when you take care of you, you will be better off.
Mariah: Are you ready to get started?
Pam: Yes ma’am.
[MARIAH AND PAM]
Time saving tips with Mariah
Mariah: So one thing I think you could do to help you conserve your energy during the day is set up a routine with Canden that’s almost like he’s going to preschool. So you have the beginnings of a routine….’
I think that will help you make it through the first half of the day.
And if you structure the afternoon the same way, like with maybe a learning activity, and some free time to play, then you’ll make the afternoon go smoothly, because he’ll know what’s coming, you’ll know what’s coming, and then by the end of the day, hopefully you’ll have a great day together.
I just want to show you a few things that you could do with him that don’t make a big mess that you have to clean up.
You can just dump the paint on canvas. And then you can just cover it, and it doesn’t have to be perfect. It’s just, you want a big enough piece…
All you have to do is throw this away. Your mess is gone, set this aside to dry, and then you have a gift.
[DR. BASS AND PAM]
Advocating for yourself with Dr. Bass
Dr. Bass: So, Pam, what are your goals for your treatment?
Just as there are potential benefits of treatment, there are also potential risks. Be sure to talk to your doctor about possible side effects.
Pam: To reduce the number of relapses that may occur.
Dr. Bass: So, that's an excellent goal, most disease-modifying therapies have been shown to reduce the number of relapses, and others have been shown to reduce brain lesions, and a few have been shown to actually delay disability progression as well.
So, I'm sure you're pretty aware that it's very important that you have a really good relationship with your healthcare provider.
Pam: I think I can be open, and have been open with him, and he has listened to me. And that's why I've been taking my medication like I'm supposed to.
Dr. Bass: I'm glad to hear that. I'm glad that you are actually being a pretty vocal advocate for yourself, and that you are actively engaging. Keep up the good work, Pam.
[JILL AND PAM]
Taking care of you, with Jill
Jill: So I was diagnosed with MS about 17 years ago, and my kids were little then. So I had to figure out certain things to do to make me be actually part of my life. I refused to lay down and not participate with my children, and with my husband.
So let me ask you, what is something that you would like to work on?
Pam: I have always wanted to, you know, be that supermom, super- grandma, and I want to be able to say yes to everything, and being the best grandma that I want to be.
Jill: In order to be superwoman, you need to take care of yourself first. Okay, so I think what would be great is if we actually sat down, and maybe we kind of work through some things. What is something that you have to do, something you want to do?
So let’s just say—let’s take this random week, Sunday through Monday. How many nights do you have to, have to bathe him?
Pam: At least 2 to 3.
Jill: Okay, so let’s say 2. So put 2 days down that you're going to have to bathe him. Now you said that you would like to bathe him, 3 days… right? So put your want in there.
But I think that’s important, to color-code and figure out what works for you. So I brought you this little book. So whether I'm having a good day or a bad day, I pick a sentence out, and I try to turn my day around.
Pam: You are important, you are worthy of great things, you are loveable. The time is now. This too shall pass. You are strong. You can do this.
Pam: Today for me was very exciting. That meant a lot to me that they were willing to give their time and expertise on the things that I need help with. I felt special. I felt like they cared, and they understood.
It’s important to say yes to being the best that I can be, as well as the best grandma that I can be and grow with my grandchildren and experience life through their eyes as well.
Narrator: The people in this video are paid spokespeople for Biogen. Pam and Jill have experience taking Tecfidera® (dimethyl fumarate). They may or may not be currently on TECFIDERA.
The people in this video are paid spokespeople for Biogen. Pam and Jill have experience taking Tecfidera® (dimethyl fumarate). They may or may not be currently on TECFIDERA.
Continue watching for Important Safety Information at the end of this video and visit Tecfidera.com.